Sick Girl Speaks!: Lessons and Ponderings Along the Road to Acceptance

Sick Girl Speaks Lessons and Ponderings Along the Road to Acceptance Surprise I m still not dead Okay sure I was born with an incurable genetic disease and yes I have faced terminal illness two times but here I am And I m ready to speak I ve now been navigating the

  • Title: Sick Girl Speaks!: Lessons and Ponderings Along the Road to Acceptance
  • Author: Tiffany Christensen
  • ISBN: 9780595472017
  • Page: 241
  • Format: Paperback
  • Surprise I m still not dead Okay, sure, I was born with an incurable genetic disease and, yes, I have faced terminal illness two times but here I am And I m ready to speak I ve now been navigating the Western medical maze for over three decades Along the way, I ve had to learn some pretty painful lessons about how to advocate for myself and what happens if I don t.Surprise I m still not dead Okay, sure, I was born with an incurable genetic disease and, yes, I have faced terminal illness two times but here I am And I m ready to speak I ve now been navigating the Western medical maze for over three decades Along the way, I ve had to learn some pretty painful lessons about how to advocate for myself and what happens if I don t I also know how scary and disorienting illness can be I have a lot to say about finding peace and acceptance, no matter what your diagnosis I offer you my advice, my humor and my personal journals as a window into the often quiet world of living with illness Whether you are a patient, family member or medical professional, chances are you will find something between these pages that you never knew Medicine is a complicated maze The time has come for a medical revolution let s do it together

    One thought on “Sick Girl Speaks!: Lessons and Ponderings Along the Road to Acceptance”

    1. Wow! What an interesting book. The author has cystic fibrosis and has had two double lung transplants. While this book is not necessarily about her "story," it relates the lessons she learned from her illness. It is applicable to anyone who has had a chronic or long-term illness, and also very appropriate for ALL medical staff to read. Thankfully, it is not a sob story, like most CF books. Although I don't agree with her religious stance, the rest of the book is strikingly accurate to my thought [...]

    2. This book was absolutely life-changing for me. Providing a spectrum of practical to esoteric advice for patients, this text is invaluable for any long-term patient in a health care setting. It is particularly valuable for young women, and for those undergoing a health crisis during independent times in their lives. A must-read for cystic fibrosis patients and lung transplant recipient, care-givers, and medical professionals.

    3. Must read for anyone struggling with chronic life-threatening illness or people treating or helping those in this situation. Very real, and spot-on. She's your new bff.

    4. As a veteran of reviewing many transplant related stories and books, I have to say that this one is in a class by itself, a very interesting and different book filled with insights and sound practical advice for navigating what the author refers to as the Medical Maze. You get some taste of that different approach by both the title of the first chapter: “Still Not Dead” and in her opening salvo announcing its time for a medical revolution, moving forward into the age of patient empowerment. [...]

    5. I liked the first half of this book better than the second, because the first half was more about the author's experiences with doctors and hospitals and how to advocate for yourself. It gave me a few pointers I should look out for and also helped me realize the importance of preparing key family members to advocate on my behalf if I am unable. I think it's a true testament to what I've experience with doctors/hospitals and this book helped validate and reinforce that only you can truly be in ch [...]

    6. This is a remarkable book by an extraordinary woman. It is written for everyone who is facing a life-challenging illness, will someday do so, or cares personally or professionally for such a person. Oh wait, that's all of us. We are blessed that Tiffany Christensen got her second wind, then a third, and used it to share with us lessons from the patient side of life.Not only does Tiffany have wonderful suggestions for negotiating this difficult path which no one chooses to travel, she has a lots [...]

    7. Christensen writes openly about dealing with serious illness for virtually her entire life. The book consists of journal entries and short essays. She shares her ideas for how people can improve their interactions with, and thinking of, people who are ill. I had the great good fortune to hear Christensen speak earlier this year (the dream of becoming a public speaker, which she writes about in 2007 is a reality in 2015) and she was one of the finest speakers I've seen. Funny, smart, and unafraid [...]

    8. This is a book with a deep and balanced perspective on illness, the patient role, the medical provider role, healing, dying, and death. It has excellent advice for anyone struggling through the overwhelming complexities of the patient role, or anyone trying to understand that role. It offers insight into how we can face pain, fear, anger, and uncertainty and find peace, love, and a new sense of self. It is pragmatic and easy to read. I hope Tiffany has great success on the rest of her path, and [...]

    9. Wow. Having Cystic Fibrosis myself I found this book chalked full of practicality. Tiffany who self published this book has CF, recipient of two (2) double lung transplants and patient advocate gives such insight and wisdom behind the emotions of dealing with an illness. She takes you on a journey of the process of grieving her near death and then back to celebrating life. Powerful. I would recommend to anyone who is or has someone in their life dealing with an illness.

    10. I found this book to be an interesting insight to one individuals thoughts on dying and grief. What I found most interesting is the overlap of emotions between grieving the death of self and grieving the death of a child. So many of her personal insights were also discovered by me after my son's death.

    11. This is a must read book for learning how to handle illness, the need for self advocacy when ill or for anyone who may need to be an advocate for someone who is ill. Far from being depressing, it is written in a forthright and empowering manner.

    12. I saw Tiffany speak last year and was inspired by her story, so I decided to read her book. She has incredibly insight and wisdom--this book contains lots of thoughtful commentary on being "sick" that can be applied to anyone's life--sick or well.

    13. This was written by a friend that used to work at my hospital. She has cystic fibrosis and works as a patient advocate. So far I have found her book to be very touching and well written. Definitely a good read for someone currently dealing with an illness but also a good read in general.

    14. Published by a woman with CF who has had two double lung transplants, this book gave amazing perspective on the physical and emotional aspects of dealing with illness. This book changed my life.

    Leave a Reply

    Your email address will not be published. Required fields are marked *